This Article Full Text (PDF) References Alert me when this article is cited Alert me if a correction is posted Citation Map Services Email this article to a friend Similar articles in this journal Similar articles in ISI Web of Science Alert me to new issues of the journal Add to Saved Citations Download to citation manager Request Permissions Request Reprints Add to My Marked Citations Citing Articles Citing Articles via ISI Web of Science (2) Citing Articles via Google Scholar Google Scholar Articles by Ax, S Articles by Jones, D Search for Related Content Social Bookmarking                   What's this?

Caring for a relative with chronic fatigue syndrome: difficulties, cognition and acceptance over time

School of Health, Liverpool John Moores University, 79 Tithebarn Street, Liverpool L2 2ER, England, heasax{at}yahoo.com

V H Gregg

Department of Psychology, Birkbeck College, University of London, London WC2, England

D Jones

Department of Psychology, Birkbeck College, Birkbeck College, University of London, London WC2, England

The present study explored the difficulties experienced by carers of chronic fatigue syndrome (CFS) sufferers, their cognitions, and their efforts to accept the illness. Semi-structured interviews were conducted with 17 carers to study these issues, retrospectively, over three stages: before the diagnosis of CFS, shortly after the diagnosis, and at present. Surprisingly, the results suggested that carers, several of them absent from home during the day, felt that their lives were only minimally constrained by the illness. Nevertheless, all carers reported specific coping efforts to manage both the illness and their own distress, and indicated that they learned to accept the illness over time. However, acceptance appeared to be a form of resignation rather than a positive appreciation of the illness. In light of the uncertainties surrounding the origin of CFS and carers’ apparent confusion, the results obtained in the present study are significant in that they increase our understanding of CFS carers’ quality of life, their efforts to cope with the illness, and the physical and emotional help they may provide to the sufferer. Such information can be usefully employed in the increasing development of counselling interventions and instrumental support networks that involve both sufferers and their carers.

Key Words: Carer • chronic fatigue syndrome • coping • family • stages

CiteULike    Connotea    Del.icio.us    Digg    Reddit    Technorati    What's this?